Light the Night for Emma’s Wish

On May 2, 2024 our daughter Emma was diagnosed with Angelman syndrome. Those first few weeks were heartbreaking. While grieving the life we had hoped for Emma, we promised that Angelman syndrome would not define her. We will do anything and everything to give her the best life possible.

Like most rare diseases, there is currently no treatment or cure for Angelman syndrome. But there is reason for hope—there is a robust pipeline of promising therapeutics, including two in phase 3 clinical trials, and several others in early clinical development. Meaningful treatment options would be life-changing for our family and for so many families like ours.

Emma’s Wish was formed to fight for Emma and others living with Angelman syndrome and other rare diseases. We are committed to our community to raise awareness and funds to support research for a cure.

This is where we need YOUR help! We cannot do this alone. It truly takes a village and we would be so grateful for any support you can offer. Together, we can hold onto hope, and strive for a brighter future.

All our love,

Mike & Ashley, proud parents to Isabella, Michael, Emma and Matthew